Biobank Lifespan

Tools - return of results to the biobank

The aim of this paper is to provide information relevant for the establishment, management and governance of biobanks in Australia.
This Policy Statement considers the issue of return of results in the specific context of population genomics and addresses possible modalities for such return.
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The international Public Population Project in Genomics (P3G), the European Network for Genetic and Genomic Epidemiology (ENGAGE) and the Centre for Health, Law and Emerging Technologies (HeLEX) have decided to develop data sharing principles specific to the context of collaborative international
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This document compares selected reference guidelines written by well-known organizations. These guidelines cover all biobanking steps, i.e. biological sample collection, labelling, processing, and storage applied to a wide range of sample types. A P3G-prepared document (2008).
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  The Medical Research Council (MRC) has developed a framework on the feeddback of health-related findings in research to help researchers identify and consider the relevant issues when designing and implementing a policy on the feedback of health-related findings in research. (2014)
The Office for Human Research Protections and the U.S.