Biobank Lifespan

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This document presents selected Key Health Organizations/Projects involved in Biobanking.
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The international Public Population Project in Genomics (P3G), the European Network for Genetic and Genomic Epidemiology (ENGAGE) and the Centre for Health, Law and Emerging Technologies (HeLEX) have decided to develop data sharing principles specific to the context of collaborative international
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This document compares selected reference guidelines written by well-known organizations. These guidelines cover all biobanking steps, i.e. biological sample collection, labelling, processing, and storage applied to a wide range of sample types. A P3G-prepared document (2008).
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The Framework for Responsible Sharing of Genomic and Health-Related Data  has been developed under the auspices of the Regulatory and Ethics Working Group of the Global Alliance for Genomics and Health, in collaboration with many individuals, organizations and committees around the world.
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