Biobank Lifespan

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This Policy Statement considers the issue of return of results in the specific context of population genomics and addresses possible modalities for such return.
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This document identifies core elements from the Sample and Data Access Policies of P³G-member biobanks. This was drafted by the Ethics and Policymaking Core, Centre de recherche en droit public (CRDP), Montreal University (2009).
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  The Medical Research Council (MRC) has developed a framework on the feeddback of health-related findings in research to help researchers identify and consider the relevant issues when designing and implementing a policy on the feedback of health-related findings in research. (2014)
The Framework for Responsible Sharing of Genomic and Health-Related Data  has been developed under the auspices of the Regulatory and Ethics Working Group of the Global Alliance for Genomics and Health, in collaboration with many individuals, organizations and committees around the world.
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The Office for Human Research Protections and the U.S.

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