Biobank Lifespan

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FRANÇAIS - Le présent document énumère une série d’éléments à considérer lors de la création de politiques d’accès aux données et échantillons de biobanques.
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  The Medical Research Council (MRC) has developed a framework on the feeddback of health-related findings in research to help researchers identify and consider the relevant issues when designing and implementing a policy on the feedback of health-related findings in research. (2014)
The Framework for Responsible Sharing of Genomic and Health-Related Data  has been developed under the auspices of the Regulatory and Ethics Working Group of the Global Alliance for Genomics and Health, in collaboration with many individuals, organizations and committees around the world.
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The Office for Human Research Protections and the U.S.
In support of the Framework for Responsible Sharing of Genomic and Health-Related Data, P3G-IPAC* prepared 3 consent tools for the Global Alliance for Genomics and Health.
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