The DACO module of the IPAC provides the following services:
- Creation of a project-customized Data Access Compliance Office ("DACO")
- Reception and review of applications for access to controlled datasets, in conformity with the goals and policies of the project
- Maintenance of a file for each access request, to be updated in case of any significant change in the research protocol, addition of new researchers, links to new projects, etc.
- Serving as the depository, ensuring the confidentiality of paper copies of applications/confidentiality agreements and other DACO material of sensitive nature
- Preparation of materials and forms necessary for the application process
- Guidance for cohort web pages, including, but not limited to:
-Information on the DACO and its processes, membership, remit, etc.
-Results of any research activities carried out by the DACO.
The International Cancer Genome Consortium (ICGC) has been organized to launch and coordinate a large number of research projects that have the common aim of elucidating comprehensively the genomic changes present in many forms of cancers that contribute to the burden of disease in people throughout the world.
The ICGC DACO handles requests from scientists for access to controlled data from the International Cancer Genome Consortium (ICGC).
The Canadian Partnership for Tomorrow Project (CPTP) enrolls 300,000 Canadians between the ages of 35 and 69 years, who agree to be followed for their adult lifetime, to explore how genetics, environment, lifestyle and behavior interact and contribute to the development of cancer and other chronic diseases. The study collects health, lifestyle and environmental information from participants over several decades. Researchers also collect biological samples, as well as physical measurements such as weight and height. With five regional study teams, this project is the largest health study of its kind in Canada.
MSSNG is a groundbreaking collaboration between Autism Speaks, Google and the research community to create the world’s largest genomic database on autism. MSSNG’s goal is to provide the best resources to enable the identification of many subtypes of autism, which may lead to better diagnostics, as well as personalized and more accurate treatments.
The MSSNG Data Access Compliance Office handles requests from scientists for access to controlled data from the MSSNG database.