Our publications

This page provides the list of P³G papers, reports and book chapters already published. For more information on publications currently submitted or in preparation, please contact us.

P³G Publication Policy

2015

• Dove, E., Joly, Y., Tassé, A.M., Public Population Project in Genomics and Society (P3G) International Steering Committee, International Cancer Genome Consortium (ICGC) Ethics and Policy Committee and Knoppers, B.M., Genomic cloud computing: legal and ethical points to consider, European Journal of Human Genetics (2015) 23, 1271–1278
• Burton PR, Murtagh MJ, Boyd A, Williams JB, Dove ES, Wallace SE, Tassé AM, […] Knoppers BM. Data Safe Havens in health research and healthcare. Bioinformatics. 2015; 31(20): 3241-3248
• Howard HC, Knoppers BM, Cornel MC, Clayton EW, Sénécal K and Borry B, endorsed by the European Society of Human Genetics; the P3G International Paediatric Platform; the Human Genome Organisation; and the PHG Foundation. Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes, European Journal of Human Genetics2015; 23(12):1593-600. doi: 10.1038/ejhg.2014.289
• Sariyar M, Schluender I, Smee C, Suhr S. Sharing and Reuse of Sensitive Data and Samples: Supporting Researchers in Identifying Ethical and Legal Requirements. Biopreservation and Biobanking. 2015;13(4):263-270. doi:10.1089/bio.2015.0014
• Sénécal K, Rahimzadeh V, Knoppers BM, Fernandez CV, Avard D,  Sinnett D  Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process. Genome. 2015; 58: 541–548. dx.doi.org/10.1139/gen-2015-0092
  
• Shabani M, Knoppers BM, Borry P. From the principles of genomic data sharing to the practices of data access committees. EMBO Molecular Medicine. 2015; doi 10.15252/emmm.201405002, 1-3

2014

• Knoppers B.M., Harris J.R., Budin-Ljøsne I., Dove E.S. A Human Rights Approach to an International Code of Conduct for Genomic and Clinical Data Sharing, Human Genetics (2014), 133(7): 895.
• Knoppers B.M. International Ethics Harmonization and the Global Alliance for Genomics and Health, Genome Medicine(2014), doi:10.11186/gm530.
• Kosseim P., Dove E.S., Baggaley C., Meslin E.M., Cate F.H., Kaye J., Harris J.R., Knoppers B.M. Building a Data Sharing Model for Global Genomic Research Genome Biology (2014) 15(8): 1.
• Ouellette, S., Tassé, A.M. P3G – 10 Years of Toolbuilding: From the Biobank to the Clinic, Applied & Translational Genomics (2014); doi:10.1016/j.atg.2014.04.004 
• Vasiliki Rahimzadeh, Anne Marie Tassé, Sylvie Ouellette, Bartha Maria Knoppers, Isabel Fortier, “P3G: Towards an International Policy Platform for Population Genomics”, Book chapter for Biobanking of Human Biospecimens, Springer Publications, ed. Pierre Hainaut, Jim Vaught, Markus Pasterk, and Kurt Zatloukal (2014) 
• Sijtsma, A., Smidt, N., van den Heuvel, E.R., Members of the Steering Committee, Burton, P., Fortier, I., Stolk, R.P., Tassé, A.M., Knoppers, B.M. Methods and tools for standardization and harmonization of individual participant data meta-analysis: the BioSHaRE initiative, Journal of the American Medical Association (2014) 

2013

• Knoppers B.M., Chisholm R.L., Kaye J., Cox D., Thorogood A., Burton P., Brookes A.J., Fortier I., Goodwin P., Harris J.R., Hveem K., Kent A., Little J., Riegman P.H., Ripatti S., Stolk R.P., P3G International Steering Committee. A P3G generic access agreement for population genomic studies. Nat Biotechnol. (2013), 5:384–385.
• Knoppers B.M., Avard D., Sénécal K., Zawati M.H. along with the along with the P³G International Paediatrics Platform members. Return of whole-genome sequencing in paediatric research: a statement of the P3G International Paediatrics Platform. European Journal of Human Genetics (2013), 22: 3-5
• Knoppers, B.M., Deschênes, M., Zawati, M.H., Tassé, A.M. Population studies: return of research results and incidental findings policy statement. European Journal of Human Genetics (2013), 21: 245-247.

2012

• Dove, E.S., Joly, Y., Knoppers, B.M. Power to the people: a wiki-governance model for biobanks. Genome Biology (2012), 13: 158.
• Harris J.R., Burton P., Knoppers B.M., Lindpaintner K., Bledsoe M., Brookes A.J., Budin-Ljøsne I., Chisholm R., Cox D., Deschênes M., Fortier I., Hainaut P., Hewitt R., Kaye J., Litton J.E., Metspalu A., Ollier B., Palmer L.J., Palotie A., et al. Toward a Roadmap in Global Biobanking for Health. European Journal of Human Genetics (2012), 20(11): 1105.
• Susan Wallace and Bartha M. Knoppers. “The Role of P³G in Encouraging Public Trust in Biobanks”, in Trust in Biobanking (Berlin: Springer-Verlag, 2012)
• Zielhuis, G.A. Biobanking for epidemiology. Public Health (2012), 126(3): 214-216.

2011

• Knoppers B.M., Harris J.R., Tassé A.M., Budin-Ljøsne I., Kaye J., Deschênes M., Zawati M. Towards a data sharing Code of Conduct for international genomic research. Genome Medicine (2011), 3:7.
• Fortier I, Doiron D, Burton P, Raina P.  "Invited Commentary: Consolidating Data Harmonization-How to Obtain Quality and Applicability?" American Journal of Epidemiology (2011) 174(3): 261-264.  

2010

• Wolfson M, Wallace SE, Masca N, Rowe G, Sheehan NA, Ferretti V, LaFlamme P, Tobin MD, Macleod J, Little J, Fortier I, Knoppers BM, Burton PR. DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data. Int J Epidemiol. (2010) Oct; 39(5):1372-82. Epub 2010 Jul 14. [PMID: 20630989]
• Fortier I, Burton PR, Robson PJ, Ferretti V, Little J, L'heureux F, Deschênes M, Knoppers BM, Doiron D, Keers JC, Linksted P, Harris JR, Lachance G, Boileau C, Pedersen NL, Hamilton CM, Hveem K, Borugian MJ, Gallagher RP, McLaughlin J, Parker L, Potter JD, Gallacher J, Kaaks R, Liu B, Sprosen T, Vilain A, Atkinson SA, Rengifo A, Morton R, Metspalu A, Wichmann HE, Tremblay M, Chisholm RL, Garcia-Montero A, Hillege H, Litton JE, Palmer LJ, Perola M, Wolffenbuttel BH, Peltonen L, Hudson TJ. Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies. Int J Epidemiol. (2010) Sep 2, Epub ahead of print. [PMID: 20813861]

2009

• Gurwitz D, Fortier I, Lunshof J, Knoppers BM. Research ethics. Children and Population Biobanks. Science (2009) Aug 14;325(5942):818-9. [PMID: 19679798]
• Khoury M, Bertram L, Boffetta P, Butterworth AS, Chanock SJ, Dolan SM, Fortier I, Garcia-Closas M, Gwinn M, Higgins JPT, Janssens CJW, Ostell J, Owen RP, Pagon RA, Rebbeck TR, Rothman N, Bernstein JL, Burton PR, Campbell H, Chockalingam A, Furberg H, Little J, O'Brien TR, Seminara D, Vineis P, Winn DM, Yu W, Ioannidis JPA. Genome Wide Association Studies, Field Synopses and the Development of the Knowledge Base on Genetic Variation and Human Diseases. Am J Epidemiol. (2009) Aug 1;170(3):269-79. Epub 2009 Jun 4. [PMID: 19498075]
• Burton PR, Hansell AL, Fortier I, Manolio TA, Khoury MJ, Little J, Elliot P. Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology.  Int J Epidemiol. (2009) Feb;38(1):263-73. Epub 2008 Aug 1. [PMID : 18676414]
• Little J, Higgins JP, Ioannidis JP, Moher D, Gagnon F, von Elm E, Khoury MJ, Cohen B, Davey-Smith G, Grimshaw J, Scheet P, Gwinn M, Williamson RE, Zou GY, Hutchings K, Johnson CY, Tait V, Wiens M, Golding J, van Duijn C, McLaughlin J, Paterson A, Wells G, Fortier I, Freedman M, Zecevic M, King R, Infante-Rivard C, Stewart A, Birkett N. STrengthening the REporting of Genetic Association Studies (STREGA)- An Extension of the STROBE Statement. Ann Intern Med. (2009) Feb 3;150(3):206-15. [PMID: 19189911]. Eur J Clin Invest. (2009) Apr;39(4):247-66. [PMID: 19297801]. Eur J Epidemiol. (2009) ;24(1):37-55. Epub 2009 Feb 3. [PMID: 19189221]. Genet Epidemiol. 2009 Mar 10. [Epub ahead of print] [PMID: 19278015]. Hum Genet. 2009 Mar;125(2):131-51. Epub 2009 Feb 1. [PMID: 19184668]. J Clin Epidemiol. 2009 Jun;62(6):597-608.e4. Epub 2009 Feb 12. [PMID: 19217256]. PLoS Med. 2009 Feb 3;6(2):e22. [PMID: 19192942]
• Palmer TM, Thompson JR, Tobin MD, Sheehan NA, Burton PR. Adjusting for bias and unmeasured confounding in Mendelian randomization studies with binary responses., Int J Epidemiol. (2008) Oct;37(5):1161-8. Epub 2008 May 7. [PMID: 18463132]

2008

• Sheehan NA, Didelez V, Burton PR, Tobin MD. Mendelian randomisation and causal inference in observational epidemiology. PLoS Med. (2008) Aug 26;5(8):e177. [PMID: 18752343]
• Knoppers BM, Abdul-Rahman MH, Chapter 2: Biobanks in the Literature, Elger B, Biller-Andorno N, Mauron A, and Capron AM, editors. Ethical Issues in Governing Biobanks. Ashgate Publishing (2008) 
• Knoppers BM, Fortier I, Legault D, Burton P, The Public Population Project in Genomics (P³G): a proof of concept? European journal of human genetics (2008) Jun;16(6):664-5. Epub 2008 Apr 2. [PMID: 18382478]
• Wallace S, Bédard K, Knoppers BM, Building a model framework for the governance of biobanks, 2008, Ethics and Policymaking Core, Centre de recherche en droit public (CRDP), Université de Montréal. 

2007

• International Working Group (IWG) Ethics Governance and Public Participation, P³G Charter of Fundamental Principles, March 23, 2007[PMID none]